Transparency

Public registry health, program status, and funding targets.

These figures are intended to make progress visible without exposing member identities or private health data.

Targets

Public goals for the next stage

View participant dashboard
Patient participation pool target$250,000

Current: $0 (0% of target)

A target for future qualifying revenue allocations if commercial revenue exists and distribution rules approve it.

Registry readiness funding target$150,000

Current: $0 (0% of target)

Supports program operations, consent infrastructure, registry quality work, and secure Mito Map summary sync.

Patient advisory support target$50,000

Current: $0 (0% of target)

Supports patient advisory participation, listening sessions, accessibility review, and community governance work.

Research opportunity enablement target$300,000

Current: $0 (0% of target)

Supports opening more study opportunities across mitochondrial disease programs.

Targets are planning goals, not investment offerings, payment promises, or guaranteed distribution amounts. Patient Success Distributions may occur only if qualifying commercial revenue exists and the program approves a distribution under governing rules.

Current status

MembersTBD
Disease programs6
Open opportunities5
Opportunity programs5

Programs with active opportunities

Opportunity sponsors2
Available participation credits380
Opportunity responses0

0 total responses

Participation pool balance$0
Commercial contracts0
Historical distributions$0